1. General

1.1 This privacy policy applies to all information you provide to the Association for Hereditary Red Blood Cell Disorders, including when applying for membership or support. Here you can read about what information we collect, how we protect and handle it, and how long we store it. We encourage you to read the policy carefully. 

2. Data controller

2.1 The Association for Hereditary Red Blood Cell Disorders is the data controller for the processing of your  personal data. Contact information:

Association for Hereditary Red Blood Cell Disorders
         CVR No.: 45023125
         Email: info@redbloodcelldisorders.org

3. Purpose

3.1 We process your personal data to fulfill our obligations as a patient association, including managing memberships and handling donations. 

4. Personal Data

4.1 We collect the following personal data:

4.1.1 Members: Name, address, postal code, city, phone number, email and information about illness and  treatment location.

4.1.2 Events: Information used for managing participation and providing ongoing updates

4.1.3 Website visitors: IP address and information collected via cookies.

5. Cookies

5.1 Our website uses cookies to improve the user experience. You can choose to accept or reject cookies through your browser settings. 

6. Legal Basis for Processing

6.1 We are entitled to process your data when you:

• Become a member
• Make contributions, 
• Submit inquiries or similar requests.

7. Sharing of Personal Data

7.1 Your information may be shared with partners who assist with IT operations, banking and payment services.

8. Your Rights

8.1 You have the right to request access to your data, correction, deletion, objection and withdrawal of consent. Please contact us if  you wish to exercise these rights.

9. Consequences of not providing information

9.1 If you do not provide the requested information, it may prevent us from delivering the services you have requested.