Articles of Association 

1. Name and Domicile

1.1 The name of the association is "Foreningen for Arvelige Røde Blodcelle Sygdomme" (The Association for Hereditary Red Blood Cell Disorders).

1.2 The association is domiciled in Ishøj.

2. Purpose

2.1 The purpose of the association is to:

• Provide support and counselling to individuals affected by hereditary red blood cell disorders

• Raise public awareness about hereditary red blood cell disorders

• Ensure that patients have access to the best possible treatment

• Create a shared community for patients and relatives affected by hereditary red blood cell disorders

3. Membership

3.1 Membership is open to anyone who supports the purpose of the association or who wishes to be part of a community within its framework.

3.2 Children and adolescents under the age of 18 may become members if a parent or guardian is also a member.

3.3 Membership is granted upon application and payment of the enrollment fee. Admission must be approved by a member of the board.

4. Membership Fees

4.1 The membership fee is determined by the general assembly and is payable annually.

4.2 Failure to pay the membership fee will result in termination of membership.

5. General Assembly

5.1 The general assembly is the highest authority of the association.

5.2 An ordinary general assembly shall be held once a year.

5.3 Notice of the general assembly must be given at least 14 days in advance.

5.4 The agenda for the ordinary general assembly must include:

• Selection of vote counters

• Election of a chairperson

• Report from the board

• Financial report

• Determination of the membership fee

• Consideration of submitted proposals

• Election of the board and auditor

5.5 Proposals to be considered at the general assembly must be submitted to the board no later than 8 days before the meeting. Proposals to amend the bylaws must be submitted no later than 3 months before the end of the month in which the general assembly is held.

5.6 The general assembly makes decisions by a simple majority vote. Voting shall take place by a show of hands, unless otherwise decided.

6. Board

6.1 The association is managed by a board consisting of a minimum of 3 and a maximum of 7 members.

6.2 Board members are elected for a term of two years.

6.3 The board is responsible for the daily operations of the association and represents it in external matters.

6.4 The board shall elect a chairperson, vice-chairperson, and treasurer from among its members. The board also determines the distribution of tasks.

7. Amendments to the Bylaws

7.1 Amendments to the bylaws may only be adopted at a general assembly, and require a two-thirds majority of the members present.

7.2 Proposals to amend the bylaws must be submitted to the board no later than four weeks before the general assembly.

8. Dissolution of the Association

8.1 The association may only be dissolved by a decision made at a general assembly, with a three-quarters majority of the members present.

8.2 In the event of dissolution, any remaining assets shall be used for charitable purposes within the field of hereditary red blood cell disorders.

9. Entry into Force

9.1 These bylaws entered into force at the founding general assembly on October 17th.