About us
The Association for Hereditary Red Blood Cell Disorders is an independent, apolitical, and non-profit patient organization dedicated to raising awareness of hereditary red blood cell disorders. We focus on educating the public about the realities of living with a serious and chronic illness.
Our goal is to build a strong and supportive community by promoting awareness and understanding of these disorders. We aim to organize events where individuals interested in supporting the Association's mission can connect, share experiences, and collaborate. Additionally, the Association is committed to providing support to anyone affected by hereditary red blood cell disorders.
We Offer
- Counselling and support to patients and relatives
- Opportunity to meet other patients and relatives
- Information on red blood cell disorders
- Events