Privacy Policy

1. General
   1.1 This privacy policy applies to all information you provide to The Association for Heriditary Red Blood Cell Disorders, including when applying for membership or support. Here, you can read about what information we collect, how we protect and handle it, and how long we retain it. We encourage you to read the policy carefully and contact us if you have questions or cannot accept the terms.

2. Data Controller
   2.1 The Association for Heriditary Red Blood Cell Disorders is the data controller for the processing of your personal data. Contact information:

The Association for Heriditary Red Blood Cell Disorders 
CVR No.: 45023125
Email: info@redbloodcelldisorders.org

1. Purpose
   3.1 We process your personal data to meet your needs, whether you are a member, recipient of support, customer, volunteer, contributor, or merely a visitor to our website. The processing is necessary to fulfill our obligations as a patient association, including handling support applications and managing memberships.

2. Personal Data
   4.1 We collect the following personal data:

4.1.1 Members: Name, address, postal code, city, phone number, email, and information about illness. In the case of support applications, we may store registration and account numbers.

4.1.2 Customers: Name, address, services, payment information. Accounting documents are kept for a minimum of 5 years.

4.1.3 Event participants: Information for managing participation and communication regarding the event.

4.1.4 Website visitors: IP address and information collected via cookies.

1. Cookies
   5.1 Our website uses cookies to enhance the user experience. You can choose to accept or reject cookies via your browser. No personal information is stored in our cookies.

2. Legal Basis for Processing
   6.1 We have the right to process your information when you:

• Become a member, receive support, make contributions, or purchase goods.
• Submit inquiries or similar.

1. Sharing of Personal Data
   7.1 Your information may be shared with partners who assist with order fulfillment, IT operations, banking, and payment providers.

2. Your Rights
   8.1 You have the right to request access, rectification, deletion, restriction, objection, data portability, and withdrawal of consent. Contact us to exercise these rights.

3. Consequences of Not Providing Information
   9.1 If you do not provide the requested information, it may prevent us from delivering the desired services.

4. Security
   10.1 We have internal procedures to secure your personal data from collection to deletion. We continually work on risk assessment and security.

5. Complaint to Supervisory Authority
   11.1 If you are dissatisfied with our processing of your information, you can complain to the Data Protection Agency:

Address: Borgergade 28, 5th floor, 1300 Copenhagen K.
Phone: 33 19 32 00
Email: dt@datatilsynet.dk

11.2 We are committed to complying with data protection principles and regularly update this policy. Changes will be published on our website.

11.3 Future changes will be published here.